I’d be willing to bet many parents of adult special needs offspring take deep calming breaths when the topic of future housing arises. Speaking for myself, with no solid resolution in sight, it’s easy to spin into a panic.
Currently, the budget we receive from our state’s department for developmental disabilities is enough to cover A.’s day program only four days a week–not a full five. Originally, our preference was to have A. in an educational residential program where he’d live what he’d learn such as maintaining his own (shared and supervised) apartment and other important skills for daily living.
Budget is determined by the level of service and remediation a client needs. In theory this makes sense. However, apparently a client needs to be much lower functioning in the eyes of the agency to be qualified for such a residential program. Odd. I would have thought since A. has the potential to reach a higher degree of personal independence, he’d be the perfect candidate for skill advancement in a residential setting.
After years of careful planning, anticipating A.’s interventions and programming, I’m completely stumped as to how to pin down his care later on in his life and ours. If there are viable resources, I can’t find them. The closest we’ve come is to put his name down on a waiting list that can be as long as ten years. Hardly a solution.
The prospect of my adult child living with us for the foreseeable future and then some is not only disheartening and unsettling but limiting for us as well as him.
On a related note, heath care is a hot topic of late. I’ve become particularly interested to learn how various U.S. states and even other countries manage care particularly as it relates to special needs issues. For instance, many have national health insurance. Perhaps we can find some kernel of possibility for us by mining what works in other places.
Readers, I’m eager to hear:
Are you happy with your state’s ability to meet the need of your adult child? If so, what type of situations are offered?
Do you live in another country? Are you pleased with its health care in general and special needs care in particular?